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Perinatal Hospice
Community Radio by Miles Eddy

There are few subjects that challenge the human experience more then life-and-death issues, especially when parents have to make those decisions for their infants. Independent producer Miles Eddy recently spoke with some parents who got devastating news about their pregnancy, and to the medical professionals who try to help them get through it.

PHOTO: Enhanced photo of Krae, born with a fatal heart defect.
Copyright 2005, Midi Age Productions


SUMMARY

  • Listen to summary "A Parents Story" (6:57)
    Do you believe in being allowed to die a natural death, or should people be kept alive at all costs? Those are tough questions, and they get mixed up into an even tougher dilemma for parents who discover that the child they have conceived has been diagnosed with a terminal illness while still in the womb. Producer Miles Eddy recently spoke with some parents who got bad news about their pregnancy, and to the medical professionals who try to help them get through it.
  • Transcripts of Summary.
  • Broadcast licensable version "A Parents Story" (6:57)
    News Summary on Public Radio Exchange.

HALF HOUR SHOW

  • Listen to entire show "Intersect Perinatal Hospice" (28:30)
    Half hour show (All 4 of 4 parts).
  • Transcripts of half-hour show.
  • Broadcast licensable version "Intersect Perinatal Hospice" (28:30)
    Half-hour show on Public Radio Exchange.

  • Listen to "Part 1 of 4: A Parents Story" (7:16)
    Hospice care is something that most people associate with elderly people, or at least terminally ill adults. But what happens when the life that is ending is still in the womb? Janell lives in southern Colorado and learned early in her pregnancy that there was a serious problem with her unborn son.
  • Listen to "Part 2 of 4: A Story of Perinatal Support" (5:31)
    Thousands of parents a year are faced with making informed decisions when their unborn baby has an uncertain outcome due to birth defects and other life threatening problems. The Fetal Concerns Program in Denver, Colorado, provides comprehensive care and support when pregnancy is complicated by concerns of fetal abnormalities. I spoke with representatives Annette LeBel, registered nurse and the Perinatal Loss Coordinator at the University of Colorado Hospital, and Nancy English, PhD, RN, and the Palliative Care Nurse at The Children’s Hospital.
  • Listen to "Part 3 of 4: Perinatal/Neonatal Ethical Issues" (7:01)
    Do you believe in being allowed to die a natural death, or should people be kept alive at all costs? Those are tough questions, and they get mixed up into an even tougher dilemma for parents who discover that the child they have conceived has been diagnosed with a terminal illness. Not all people face the same situation with the same beliefs about what is right and wrong. The ethical issues placed on the family and the medical communities are enormous. The 4th Forum of Perinatal / Neonatal Ethical Issues was held in May of 2005 in Colorado Springs to address some of these issues. After the first day of this three-day event, I spoke with some of the guests and event organizers.
  • Listen to "Part 4 of 4: A Matter of Language" (5:22)
    How we view a situation can drastically change how we make decisions, and the language we use can affect our perspective. Doctors and nurses have to communicate complex and difficult issues to grieving families, who then have to make informed choices, often in a very short time span. How those questions are phrased and presented is very important.

OTHER LINKS

  • The Fetal Concerns Program in Denver provides comprehensive care and support when pregnancy is complicated by concerns of fetal abnormalities. For more information, contact Nancy English at The Children’s Hospital at 303-864-5548, or Annette LeBell at 303-372-4021

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